Welcome to the Forum

Here is a place for adults with Dissecting Cellulitis of the Scalp to share there life stories,pictures and share medical treatments . In this world we have the ablity to treat all sorts of disorders and they have all this research and funding to help people. Our disorder has nothing no research,no medical doctors that specialize in DCS. We are left with great doctors that guess and try but we are the ones who suffer for this with realy hard side effects. This forum will be the start of some day a charity with hope to get research! please join in

Thursday, July 5, 2012

DCS Nonprofit Charity


Welcome

So its been almost a year since my life changing events and getting my life back, so know i want to start to help everyone else out there. Like i was at my wits end and the way i do that is starting a 100% non profit charity geared toward men & woman who have DCS and getting them help in either infomation,Doctors,Money,Disabilty Serves or just moral support.  So if you are wondering what you can do well its not just moeny its you your infomation where you are from ,email,location and doctors you trust that have helped you in this long road . all these things will buid a data base so the more people that come forward will be able to get help locallyand some one inthere city or state they can befriend for some one else to know what they are going through . Very soon i will get a po box for the charity and a web site up , this is a long road and i am one person so if anyone of us that has skills to help get this going feel free to email me any skills are welcome . 



Friday, October 14, 2011

Cured of DCS but extreme!!!

  1. LISTEN UP EVERYONE WEATHER YOU OR FAMILY MEMBER IS SUFFERING FROM THIS AND YOUR AT THE POINT I WAS AFTER SIX YEARS F 9 DERMS TELLLING MEI HAD TO LIVE WITH THIS I WAS DAMMED IF I WAS GOING TO SO I FOUND DR SAMPSON IN PLASTIC SURGEN AT BRIGHAM AND WOMANS HOSPITAL IN BOSTON MASS THEY DID WHAT IS THE MOST EXTREEME I HAD DS ON 90 PERCENT OF MY SCALP HE REMOVED MY SCALP ON JULY 21ST YES IT IS BAD YOU HAVE UR HEAD WRAPPED FOR 3 WEEKS THEN ON AUGUST 11TH I HAD SKIN GRAPHS FROM THE BACK OF MY LEG TAKE AND PUT ON MY SCALP YET IT A 5 MONTH ROAD BUT I WILL TELL YOU ALL THIS IM CURED!!!!! MY SCALP IS BALD SMOOTH AND I AM OFF ALL MED AND PAIN MEDS IF YOU WANT TO SEE WHAT IT LOOKS LIKE GO HERE ALL THE PICS AR AT THE BOTTOM OF THE PAGE I WILL ALSO PUT DR SAMPSONS LINK AND INFO HERE FOR YOU TO CALL HIM IF YOU DO IVE TOLD HIM ABOUT YOU ALL AND HE IS A LIFE SAVER AND A GREAT MAN HES THE CURE I WAS A HIGH RISK MORE SO THAN ANYONE ELSE IM 6′4 390 LBS DIBITIES AND OTHER HEALTH ISSUES I FEEL NORMAL AGAIN AND ALIVE ITS LIKE THE FOG OF ALL THOSE MEDS WE ALL TAKE AND EFFECTS IS GONE PLEASE EVEN IF YOU DONT THIS ITS THAT BAD NOW READ ABOUT IT I WILL GET THERE SOME DAY EMAIL ME EXECUTIVECHEF26@YAHOO.COM
    DR SAMPSON LINK
    http://www.brighamandwomens.org/Departments_and_Services/surgery/services/PlasticSurg/documents/sampson.aspx
  2. MY BLOG WITH PICS
    http://www.flickr.com/photos/43038535@N05/

Sunday, July 31, 2011

The begining

Hello everyone if you are new to this blog or have read it in thep past i have allot to tell you all   just let me make this clear this is my opion and  what is working for me will not  be for everyone . i have had this for 6 years my case as seen in the pics at the bottom of my blog are very mcuh the worse you can get i was seen bye all sorts of drs and tried everything steroids embrel acctutain prednazone opening them up injections lasers nothing worked. i went to a dr at lahey clinic here in burlington mass dr moshella who is 90 years of and wrote the book on this disorder his asnwer scalp me like he did back in the 60s with naval men he cared for no surgen in lahey who would touch it well long story short i went to brigham and womans in boston mass saw a dr bye the name of dr sampson in the plasticcs department he is on the team of drs who does the face translant witch is all over the news world wide his answer to me lets take it off al of it a first i didnt think he was serous but when we got apporoval from the insurance
 i had my date july 21st 2011 came and i had never had surgery before so i was very scared all i remeber was the white light in the OR them waking u p in recovery to my family after the dr came he told me everything went well he had to remove allot he cut out everything witch was a 1/2 in thickness in the front to a inch in the back but it was gone did it hurt yes i am a week out of surgery and there is so much to tell everyone about this i plan on doining this in stages to explain it the right way but now this like me if you wake up every day with pain leeking bleeding smell of it balding and mentally you cant take it any more there is now hope if your lost and need your life back  email me call me i will get you to dr sampson i woke up the last two days no smell no bleeding no pain from the swelling and my skin is growning agan yes i make look like a burn victum but i wont be the smeelly bleedig weirdo they look at anymore please theres hope even with there isnt a big patch like mine the smaller ones will do the same but be easyer to heal and fix  goodl uck howard shepard jr 105 freda lane lowell ma 9789351679 call if you want answers

Wednesday, February 16, 2011

Hello Everyone Welcome To Our Place

Please feel free to  tell your story and not feel afraid of what people think cause we are all here to give our story and help where we can . Also Post Links and photos to the forum and enjoy ?

About Me

My Photo
i am a 32 year old married man with 2 children i was a very succesful executive chef in the corprate world but due to this disorder i had to leave it hopefully some day myself and people with this will be able to feel better and get back to work