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About Me
- Dissecting Cellulitis of the Scalp
- i am a 32 year old married man with 2 children i was a very succesful executive chef in the corprate world but due to this disorder i had to leave it hopefully some day myself and people with this will be able to feel better and get back to work
Well after6 years of this horrible disorder i have found a doctor who is published in this problem and has experiance with dealing to help poepl like us. the goal some day is to remove all the bad area of my scalpbut for now he is got me on embrel a biological anti inflamitory shot with gabapenton for the pain i will let everyone know how it is working !!1
ReplyDeleteThinking of you, Cousin!
ReplyDeleteMarcella
I am not the typical person with dissecting cellulitis of the scalp. I am a senior citizen and female. I have been to 7 dermatologists over a period of years. I find it hard to believe there are so many dermatologists who cannot diagnose or treat this condition. Some were rude and treated me like a mental case. Most of them came highly recommended. Finally, by chance I heard of a dermatologist in Nashville,TN,who had successfully treated someone with my symptoms. Unfortunately, I did not have a name. I phoned the Lupus Foundation in Nashville who referred me to a dermatologist at Vanderbilt who treats Lupus diseases of the skin. No, I do not have Lupus after extensive tests. However, Dr. Miller made the diagnosis and is successfully treating me. I was on antibotics for a year with topical treatments--even injections. For a year and a half, I have been on soriatane caps. I am tremendously better and have hope of soon being completely well. You would not want to read all I have been through with this condition. One of the greatest frustrations was the dermatlogists who misdiagnosed, and at times, even blamed me for my condition. Thank God for Dr. Miller.
ReplyDeletemy son has dissecting Scalp Cellulitis he has had it for 6 years, for the 1st few years we saw doctors after doctors trying to find out what he had, once we got a diagnosis and found a doctor that would treat it, he was cut on every week for 2 years to have them cleaned out and drained, I did research daily trying to find something that would help him, I found a doctor in Detroit MI. that does YAG Laser treatment, when we started going there he had more than 30 active nodules, we make the 12 hour trip every other month for the treatment, we been going there a little over a year now and he is down to 3 active nodules, they are hoping that over the next few months they will all be gone, here is the doctors name and address if you are interested in seeing them or to learn more from them Dr. Iltefat Hamzavi, MD, Henry Ford Health System, 3031 West Grand Boulevard, Suite 800, Detroit, MI 48202, or e-mail: ihamzav1@hfhs.org 1-800-436-7936, I do have to tell you that I was amazed by the very 1st treatment, and I am hoping that within the next few months that he will be free from these awful nodules I hope that you consider given them a try they are well worth the trip.. and Dr. Hamzavi is the best you can email him any question and he is great about getting back to you. Hope that you find something that will help you.
ReplyDeleteHi, I have had DSS for almost 2 years now and it is practically taking over my entire head, I have posted some youtube video's if you are interested in seeing the progression.
ReplyDeleteHello all. although I have had DSC since I was 17 (i am now 20) i was recently diagnosed with it last year. I am a college student studying in chemistry hoping to go into the medical field. The more I study this disease the more I feel like it has been more or so swept under the rug by researchers. I was planning on taking my future medical degree into the forensics field; but the more i look into this, the more I realize the world needs more researches for diseases like this. Unless one is diagnosed with this disease, I do not think the fear of this disease is comprehensible. As my friends knew I had a scalp problem around a year ago, I have been keeping it from them that it is back and more severe than ever. As my significant other noticed hair lose, I told her about the DCS coming back, she asked me if I would ever keep a serious disease from her. I was distraught that this was not considered a serious disease. I am a collegiate football player, which obviously means football is a huge part of my life. When my DCS flared up during season, I missed a couple practices, but nothing major. Now it is worse than ever, and I cringe to even put a hat on. As spring football is approaching, I do not even know how I am going to manage to put a helmet on. I am approaching my final years of football, a huge part of my life, and I am terrified DSC is going to keep me away from the game that has taught me everything. It is obvious to me that people who do not have this disease cannot understand how life changing this can be. I believe there should be more doctors researching a cure for this disease. I have many theories to the cause of this. I am going to use myself as a test to see if any of my ideas are the cause of this. It is a relief to see I am not the only one going through this and it feels great to finally speak out about it when no one else understand. God bless you all.
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