Welcome to the Forum

Here is a place for adults with Dissecting Cellulitis of the Scalp to share there life stories,pictures and share medical treatments . In this world we have the ablity to treat all sorts of disorders and they have all this research and funding to help people. Our disorder has nothing no research,no medical doctors that specialize in DCS. We are left with great doctors that guess and try but we are the ones who suffer for this with realy hard side effects. This forum will be the start of some day a charity with hope to get research! please join in

Thursday, July 5, 2012

DCS Nonprofit Charity


Welcome

So its been almost a year since my life changing events and getting my life back, so know i want to start to help everyone else out there. Like i was at my wits end and the way i do that is starting a 100% non profit charity geared toward men & woman who have DCS and getting them help in either infomation,Doctors,Money,Disabilty Serves or just moral support.  So if you are wondering what you can do well its not just moeny its you your infomation where you are from ,email,location and doctors you trust that have helped you in this long road . all these things will buid a data base so the more people that come forward will be able to get help locallyand some one inthere city or state they can befriend for some one else to know what they are going through . Very soon i will get a po box for the charity and a web site up , this is a long road and i am one person so if anyone of us that has skills to help get this going feel free to email me any skills are welcome . 



15 comments:

  1. i am excited i need more information on the cost of everything , was it a painful process etc. w/b stevenallen2003@gmail.com

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  2. please feel free to visit our new site that is under construction www.dissectingcellulitisofthescalp.org

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  3. Hi I too suffered from this condition in 2009, and put a website, with the same intention detailing my treatment: http://www.dissectingcellulitisofthescalp.co.uk/ back then. I'm sorry you had to have your scalp excised, that is a very extreme measure. looking at your pictures it was a very extreme case. I get a good few people message me every month, maybe we should some how try and put together a group or list of people so we can share more information? A collaboration for the greater good?

    Kindest regards

    GArry Bryant

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  4. I have suffered with DCS of around five years. Last year I was put on a six-month course of Isotretonion which didn't clear the problem up but stopped it getting worse. I came off the drugs after being told that the disease had gone and all that was left was scare tissue. But just recently it has come back with a vengeance. After a three month wait I am due to see the consultant at the hospital again, hopefully he will put me on a longer course of Isotretonoin (despite its very unpleasant side effects). Really feel for the creator of this website, looks really painful. Mine isn't as developed as that but still causes lots of discomfort (especially at night) and stress. I will re-post on here after I have had my consultation on Monday.

    Rich

    PS Great website btw!

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  5. A great sharing~ tot mine is a granuloma after scalp AVM surgery. Thanks for your website and it give me strength to live on~

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  6. Hello, someone posted a slideshow of your process on a site called LiveLeak. I watched it and was amazed at the process you had to endure. don't have DCS, but you're strength is encouraging. Thank you for posting that.

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  7. Hello everyone I have suffered from DCS going on 9 plus years now and like many of you I'm at my Witts end I would not wish this on anyone. I could go on telling you how this has affected my life but I will just stating what all of you already know so I would rather deliver some positive news about this condition that I have just recently come across. I have found a provider that specializes in treating this condition with a extremely excellent results from what they have told me. The name of the Company is Eastside Chiropractic and Injury Treatment Center located in Dayton, Ohio and their website is www.eastsidechiroimagerejuv.com I don't live in Dayton, Ohio but I'm planning to travel there to be treated. The procedure they use to treat DCS is mostly known in the advanced skin rejuvenation world and is non-surgical, it is called Microcurrent which there are many providers that use this but not for the scalp the only company in the entire USA is the one mentioned above. As a sufferers of this debilitating scalp condition it's critical that we bring medical awareness of this and I'm willing to do whatever it takes so that more providers start providing this treatment. If you or someone you know suffer from DCS I highly recommend you give Eastside a call and talk to them. I will let you all know the results of my treatment with them... Thanks and God Bless

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  8. Thank you for this. I just recently was diagnosed with this condition, and quiet honestly it has enabled my life completely. I was on a very good track and with in the last year everything has fallen apart due to stress, the hair loss, the blood, sleepless nights, insecurities.... Its all just coming in real hard. Hope that someone could find a better solution for this, please keep us updated.

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  9. I have created a Facebook group page for sufferers of Dissecting Cellulitis of the scalp. I think it is very important to have a place to join together to discuss issues, solutions, trial and errors, and offer support. It is very important to gain a resolution to this issue!! Please join me! =)

    https://www.facebook.com/dissectingcellulitisofthescalppcas

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  10. What is Cellulitis Symptoms. when the spreading bacterial infection happens just below the skin surface. It is commonly caused by Streptococcus pyogenes or Staphylococcus aureus. The bacteria cause the issue basically it is the inflammation of the skin cells.

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  11. The problem gets resolved within few days however in the event that it takes genuine shape then it could welcome more perilous issues. In this way it is critical to treat the issue of cellulitis and here is some of the powerful Cellulitis Natural Treatment that you ought to take with a specific end goal to get alleviation.

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  12. Cellulitis is one such sort of health issues that affect adults as well as children. Use of natural products for Cellulitis Home Remedies can give better results with no side effects. Herbs Solutions By Nature offering Luseton, an herbal supplements made of natural herbs that are obtained from authentic herb retailers.

    http://www.herbs-solutions-by-nature.com/Cellulitis.php

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  13. Treatment of Cellulitis at home includes religiously taking prescribed antibiotics to help treat the infection. The normal oral antibiotics are those coming from the penicillin family such as flucloxacillin.

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  14. Effective  Natural Remedy for Cellulitis  aims to replace water and natural oils in the skin, and to maintain skin hydration. In addition, treatment helps to control keratin levels and soothe irritated skin.

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About Me

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i am a 32 year old married man with 2 children i was a very succesful executive chef in the corprate world but due to this disorder i had to leave it hopefully some day myself and people with this will be able to feel better and get back to work